The National Gynae-Oncology Registry (NGOR) is a clinical quality registry operated within the Cancer Research Program in the Monash University School of Public Health and Preventive Medicine. This registry currently collects clinical data from gynaecological oncologists participating across a number of public and private hospitals in Tasmania, Victoria, New South Wales and Western Australia. The overall aim of the registry is to monitor and report on quality of care provided to women with gynaecological cancers in benchmarked, risk-adjusted reports illustrating how current management adheres to 'best practice' guidelines. Patient reported outcome measures (PROMs) are questionnaires completed by patients, which are designed to ascertain the patient perspective on the care received for a disease or condition of interest. There are several tools that exist currently, however the tool(s) used in the NGOR will need to be specific to the registry population, and selecting an appropriate tool and determining how to distribute it (e.g. email links, send in the mail, complete in person etc...) has a large effect on feasibility, associated costs and data quality. This project will involve a review of existing tools developed and used by other researchers across a range of contexts; as well as an assessment of the practicality of their application in a registry setting. It will also involve an assessment of feasibility and costs associated with potential modalities for their distribution in this particular patient cohort.
Clinical quality registry; patient experience; patient reported outcome measures (PROMs); endometrial cancer; cervical cancer
School of Public Health and Preventive Medicine » Epidemiology and Preventive Medicine
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