Patient-Partnered Research in Granulosa Cell Tumours: Improving Follow-up, Supportive Care and Survivorship

Granulosa cell tumours (GCT) are rare ovarian cancers with unique clinical challenges, including late recurrence, uncertainty around optimal follow-up, and limited evidence to guide supportive care and survivorship. For many patients, the experience of diagnosis, treatment, surveillance, and recurrence can be associated with substantial psychological, physical, and informational burden. Despite this, the lived experience and supportive care needs of patients with GCT remain underexplored. Our research program is working in partnership with consumers, advocacy groups, and collaborators including Professor Vicki White to develop patient-centred research that addresses the unmet needs of people living with GCT. This work aims to better understand patient experiences, survivorship concerns, follow-up practices, and priorities for care, with the goal of improving both clinical management and quality of life outcomes. Projects may involve qualitative research, survey development, patient-reported outcome measures, or analysis of patient-partnered data generated in collaboration with consumer groups. This project will suit students interested in psycho-oncology, survivorship, patient-reported outcomes, consumer engagement, and translational cancer research. It offers an opportunity to contribute to research that is directly informed by patients and designed to improve care for people affected by rare ovarian cancers.