Beyond Falls: Preventing Fractures in Parkinson’s Through Bone, Muscle and Nutrition Health

Staying strong, mobile and independent for as long as possible is a priority for people living with Parkinson’s disease (PD) – yet one of the major causes of loss of independence, osteoporosis (fragile bones) and fractures, is often overlooked. PD is widely recognised for its effects on movement, balance and falls, but much less attention has been given to bone health, muscle health and nutrition. For many people, a fracture represents a major setback that can lead to hospitalisation, reduced mobility and a permanent change in living circumstances. Bone health is rarely included in routine Parkinson’s care, and many people are never offered screening or practical advice on how to protect their bones and muscles. This study will be the first Australia-wide project to explore bone, muscle and nutrition health from the perspective of people living with Parkinson’s disease. People from across the country will be invited to complete a national online survey about their experiences, their knowledge of bone health, whether they have had falls or fractures, whether they have had a bone density test, and how Parkinson’s affects their diet, strength and physical activity. This will provide the first clear national picture of these issues. We will then hold small group discussions with people living with Parkinson’s in Victoria to hear more about their lived experiences and their priorities for care and education. These conversations will help us understand the real-world challenges people face in staying strong and independent, the barriers to getting the right support, and what practical strategies would help them most. This approach ensures that future programs are shaped in partnership with the Parkinson’s community and are focused on outcomes that matter to them. The project brings together a multidisciplinary team with expertise in Parkinson’s disease, movement and gait, bone and muscle health, and clinical nutrition. By working across these areas, the study looks beyond movement symptoms to the broader physical health factors that influence whether someone can continue to walk confidently, remain active and participate in daily life. By focusing on an area that has been largely overlooked, this project aims to deliver meaningful outcomes that support people with Parkinson’s to live well, stay safe and remain independent in their homes and communities for as long as possible.