The Cancer Research Program within the Monash University School of Public Health and Preventive Medicine is currently looking at patterns of care for women in Victoria who have been diagnosed with ductal carcinoma in-situ DCIS), a pre-invasive disease of the breast, the incidence of which has rapidly increased since the commencement of population-based screening in Australia. It is suspected that many women are not aware of the non-invasive nature of the condition, given the similarity in its current management to that of breast cancer, and the inclusion of the term 'carcinoma' in the name. Semi-structured interviews are being conducted this year (early 2020) during which women who have been diagnosed with DCIS in the past few years will be asked about their experiences, their understanding of the nature of the disease (i.e. non-invasive rather than malignant) and the decision-making process when it came to choosing a treatment pathway. It is expected that these findings will uncover a need to determine how current patients are making decisions about their treatment, especially in light of the 'watch and wait' trials that are currently active. The proposed 2021 project would involve developing a questionnaire that can be prospectively distributed to women diagnosed with DCIS, and the analysis of ~100 completed questionnaires to determine what is happening currently, and if patients' attitudes and understanding of the disease have changed.
Pre-invasive disease; breast cancer; DCIS; patient experience
School of Public Health and Preventive Medicine » Epidemiology and Preventive Medicine
553 St Kilda Rd, Melbourne (adjacent to The Alfred)